24 Jan 2017

Moebius Syndrome Awareness Day

Moebius Syndrome is

Moebius syndrome is a rare neurological condition resulting in facial paralysis that may include respiratory, eye, limb, speech, hearing and other disorders.

Fresh Printz Industries donate ONE T-shirt to a person in need for EACH T-shirt you buy! So create awareness and make a difference - buy a T-shirt today!

Credit & Sponsors

It is with great appreciation that we acknowledge:

Vicki McCarrell
President : Moebius Syndrome Foundation - USA
Visit their website

Tim Smith
President : The Many Faces of Moebius Syndrome
Visit their website

Smile Foundation SA
For continuous support for workshop material, conference attendance & parent /child support
Visit their website

Möbius syndrome From Wikipedia, the free encyclopedia

Möbius syndrome (also spelled Moebius) is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. Most people with Möbius syndrome are born with complete facial paralysis and cannot close their eyes or form facial expressions. Limb and chest wall abnormalities sometimes occur with the syndrome. Most people with Möbius syndrome have normal intelligence, although their lack of facial expression is sometimes incorrectly taken to be due to dullness or unfriendliness. It is named for Paul Julius Möbius, a neurologist who first described the syndrome in 1888.[1]

Find us on :

Just click on the image to visit :

Letter to the Teacher

Dear Teacher:

I'm giving you this because I want you to understand more about me. You'll see I am just like everybody else in your class in lots of ways, but in some ways, I'm not the same. I need you to know how I am “different” from the other kids in our class so you can help make school a safe place for me.

I have Moebius Syndrome, which means that I have a paralyzed face. I was born with it. I can't smile, close my eyes completely, blink, frown or show any facial expression. Believe me. I would have much rather been born with something else because it really hurts at times to have this! Maybe the hardest part about Moebius is that it is so rare and hard for others people to understand. Who ever thought that somebody could never smile?

MoebiusConnect.com

Moebius syndrome is a rare neurological condition resulting in facial paralysis that may include respiratory, eye, limb, speech, hearing and other disorders.

For International Moebius Syndrome related websites of foundations, information and support groups, visit the Moebius connect.com Website.

Knowledge is power. Being part of groups open doors too support and information.

You will find an interactive map with links to many International Moebius Syndrome Related Organisations.

RareConnect

Connecting Moebius Syndrome Patients Globally.

A partnership project of EURORDIS and NORD, RareConnect provides a platform for patients, families, and patient organisations to develop online communities across continents and languages. Translation of stories, blog, and forum posts are completed by human translators. Patients can therefore have conversations with others in languages they do not even speak themselves.

Visit the Moebuis Syndrome Community today and join the global conversation.

Smile for ME

Smile for me (16 page booklet). A story written for primary school aged children, to help them understand the condition called Moebius Syndrome. Children with Moebius Syndrome don’t have the ability to show facial expression, such as smiling, anger, and sadness. They have a mask-like facial expression, and communication with other children is difficult. This is a story to help explain why children with Moebius Syndome smile from the inside.

The official website of the Moebius Syndrome Foundation-Africa

This is the official website of the Moebius Syndrome Foundation-Africa (MSFA), a NPO organization. Donations are used to achieve the goals of the Moebius Syndrome Foundation-Africa (MSFA) and are not for personal use. The Moebius Syndrome Foundation-Africa (MSFA) and its Board does not diagnose Moebius Syndrome/ Sequence in individuals nor does it endorse particular medical professionals/treatments/organisations. However, with the consent of an individual, we could put him/her in contact with a Medical Professional(s) for correct medical evaluation.