Aims and Objectives

  • Create a database of children with Moebius Syndrome;
    (listing details of the patient, diagnostic data, ie symptoms present, where and when diagnosed; medical support ie, the network of doctors and examinations needed; family history
  • Spread awareness through campaigns, media, posters.
  • Provide reading material in the three official languages;
  • Offer support to children and parents - this could be offered via the website, e-mail and printed form.
  • Obtain funding for a special need feeder (Haberman Feeder) and to supply parents of new-born babies with a feeder.
  • Offer assistance with recruitment for adults with Moebius Syndrome
  • Educating the community and educators.
  • To set up a trust fund to offer bursaries for children with Moebius Syndrome who wish to further their studies.

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