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Dear Friends

On the 24th of January 2011 , the first ever Moebius Syndrome Awareness Day will take place and will be celebrated worldwide by the various Moebius Syndrome communities and organizations.

January 24th is a significant date in the history of Moebius Syndrome as it is the birth date of Professor Paul Julius Möbius, the neurologist who first diagnosed the disorder in 1888, and who was born on January 24th, 1853 .

The concept of the Moebius Syndrome Awareness Day was conceived by Donnie Downs, a board member of The Many Faces Of Moebius Syndrome website, whose son Caleb was born with the syndrome.

During the course of 2010 a cause page was started at (do visit and join) in support of a Moebius Syndrome Awareness day – to date it has attracted 4343 members, all in support of Moebius Syndrome awareness.

The first ever Moebius Syndrome Awareness Day in 2011 will be supported by all three of the Moebius Syndrome organizations:

The Moebius Syndrome Foundation; Visit their Website
The Many Faces Of Moebius Syndrome; Visit their Website
The Moebius Syndrome Research Trust; Visit their Website

Those of us who have Moebius Syndrome or who are a parent, relative or friend of someone who has Moebius, are all too aware of the lack of resources, understanding and knowledge of it - even sometimes from seasoned medical practitioners and other learned professionals.

The aim of a Moebius Syndrome Awareness Day is, of course, to create an awareness of the syndrome; to break the social barriers which can be created by it; to foster a greater understanding of it by the medical community and public at large; and to literally bring the syndrome and the perceptions of it, and those who have it, out of the dark ages, where it has been languishing for far too long.

The true experts on Moebius Syndrome are you - the parents, siblings and individuals who live with it every day of your lives. Please join us in celebrating the first ever Moebius Syndrome Day on January 24th. Together we can improve the lives of those affected by it, and those who have yet to be affected by it.

Gavin Fouche



Feedback of the day - see the video and attached PDF file:





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24012011.pdf2.39 MB

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The official website of the Moebius Syndrome Foundation-Africa

This is the official website of the Moebius Syndrome Foundation-Africa (MSFA), a NPO organization. Donations are used to achieve the goals of the Moebius Syndrome Foundation-Africa (MSFA) and are not for personal use. The Moebius Syndrome Foundation-Africa (MSFA) and its Board does not diagnose Moebius Syndrome/ Sequence in individuals nor does it endorse particular medical professionals/treatments/organisations. However, with the consent of an individual, we could put him/her in contact with a Medical Professional(s) for correct medical evaluation.